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FRIDAY |
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8:00 AM-5:00 PM |
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Arrivals and Registration |
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12:00-1:00 PM |
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Special Lunch Sessions
Inhibitors to Factor IX
Managing Co-infection
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1:00-2:00 PM |
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Breakout sessions: Treatment of Hemophilia with Inhibitors: Medical Issues that Matter
Prophylaxis
Immune Tolerance Therapy (ITT)
Management of Joint Disease
Pain Management and Addiction
Venous Access
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2:15-3:15 PM |
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Breakout sessions: Treatment of Hemophilia with Inhibitors: Medical Issues that Matter
Prophylaxis
ITT
Management of Joint Disease
Pain Management and Addiction
Venous Access
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3:30-4:30 PM |
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Breakout sessions: Treatment of Hemophilia with Inhibitors: Medical Issues that Matter
Prophylaxis
ITT
Management of Joint Disease
Pain Management and Addiction
Venous Access
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4:30-5:30 PM |
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Ask the Experts Coffee Break
Informal session with faculty to allow participants to interact one-on-one with the faculty
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6:00 PM |
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Welcome Dinner
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7:00 PM |
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Get Acquainted Activity
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8:00 PM |
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Storytellers Lounge (attendance optional, child care available for hourly fee)
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SATURDAY |
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7:00-8:30 AM |
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Breakfast |
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8:30-9:15 AM |
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Patient Testimonials
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9:15-10:45 AM |
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How to Treat Bleeding
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Latest advances in the way that bleeding is treated
- Dosing of bypassing agents
- Frequency of doses
- Scheduling
- Combination therapy
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10:45-11:00 AM |
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Break |
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11:00 AM-12:00 PM |
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The Future of Managing Hemophilia with Inhibitors
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Discussion focusing on medical management and management of quality of life with inhibitors
- Future treatments
- Clinical trials – how to enroll
- Advances in managing activities of daily living
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12:00-1:30 PM |
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Lunch with Roundtable Discussions with the Faculty |
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1:30-2:30 PM |
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Breakout sessions: Taking Care of Life with Hemophilia with Inhibitors
Financial Considerations
Adolescence and Risk-Taking
Parenting Issues
Vocational Opportunities
Advocating for Your Health
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2:45-3:45 PM |
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Breakout sessions: Taking Care of Life with Hemophilia with Inhibitors
Financial Considerations
Adolescence and Risk-Taking
Parenting Issues
Vocational Opportunities
Advocating for Your Health
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4:00-5:00 PM |
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Breakout sessions: Taking Care of Life with Hemophilia with Inhibitors
Financial Considerations
Adolescence and Risk-Taking
Parenting Issues
Vocational Opportunities
Advocating for Your Health
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6:00 PM |
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Buffet Dinner (optional) |
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8:00 PM |
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Storytellers Lounge (attendance optional, child care available for hourly fee) |
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