2009 Inhibitor Education Summit Agenda
Thursday
8:00 AM–5:00 PM Registration
4:00–6:00 PMSummit Safari (Session for first-time attendees)
Friday
7:30–8:45 AM Registration and Breakfast
8:45–9:45 AM Summit Kickoff Greeting and Group Activity
9:45–10:00 AM Break
10:00 AM–12:00 PM General Session
Caregiver Support
New Trials, Future Treatments, and Genetics
12:00–1:00 PM Lunch
1:00–2:30 PM Breakout Session I
Father Caregivers Only: Dialogues with Dad: the Unique Journey
Mother Caregivers Only: Special Challenges and Solutions
Young Adult Session (Ages 13-22) PART I Featuring: "Tooth or Consequences" and "Growing Up is Right Around the Corner: Are You Prepared?"
2:30–2:45 PM Break
2:45–4:15 PM Breakout Session II
What's New With ITI and a Joint Effort: an Overview of Helpful Braces, Splints, Gizmos, and Gadgets
Parent Discussion Group of 0-4 Year Olds: Talking the Truth: Parenting a Young Child With Inhibitors
Parent Discussion Group of 5-12 Year Olds: Challenges and Concerns
Parent Discussion Group of 13-22 Year Olds: Challenges and Concerns
Young Adult Session PART II: Transitioning to Independence
Young Adult Session PART III: Let's Discuss It
4:15–5:15 PM Ask the Experts Coffee Break (Optional)
5:15–6:30 PM Family Networking (Optional)
6:30–7:15 PM Dinner
7:15–8:30 PM Get Acquainted Activity
Saturday
7:30–8:15 AM Breakfast
8:15–10:30 AM General Session
Insurance and Financial Considerations and Legislative Advocacy
PAIN: Living Through It, Living Around It
10:30–10:45 AM Break
10:45 AM–12:00 PM Breakout Session III
Identification and Early Treatment of Bleeds: What to Look for
Nutrition: Discovering Your Food Pyramid
Dr. Bill's Perfect Pill: Exercise
Can I Have Surgery? An Overview of Orthopedic Surgical Options
12:00–1:00 PM Lunch
1:00–2:15 PM Breakout Session IV
Identification and Early Treatment of Bleeds: What to Look for
Nutrition: Discovering Your Food Pyramid
Dr. Bill's Perfect Pill: Exercise
Can I Have Surgery? An Overview of Orthopedic Surgical Options
2:15–3:15 PM Ask the Experts Coffee Break (Optional)
3:15–6:30 PM Family Networking (Optional)
5:30–6:30 PM Youth Camp Parent/Child Activity
6:30–9:30 PM Group Dinner (Child care available for an hourly fee)
Sunday
8:00–9:00 AM Breakfast and Departures